People with lipoedema in the UK face significant challenges. Many are not recognised by healthcare professionals as having the condition or are misdiagnosed. Awareness of lipoedema among medical practitioners is poor, and little clinical research is focused on the condition. Even when it is diagnosed correctly, accessing appropriate care within the NHS may be difficult because of poor understanding of treatment and referral routes, and geographical variations in clinic availability, funding and capacity.
This document, which was developed by key opinion leaders, patients and UK third sector organisations, will be of interest to anyone involved in delivering support and clinical services to people with lipoedema, including GPs, lymphoedema therapists, community nurses, plastic surgeons, dietitians, commissioners, third-sector organisations and more.